Description

ABSTRACT

Disease heterogeneity and geographic dispersion has becomes an obstacle among rare disease treatment & research options. Finite access to convenient care, delayed diagnosis and limited or non-existing treatment options over burdens the patients. Motivated by these challenges, the patient organizations and Indian government has played a critical role in upholding patient needs and aid their physical and mental strength. This article intends to shed light by making a short review regarding the progress in rare disease initiatives, awareness and research activity developments in India in tackling 450 and more such diseases and their contributions in par with government activities.

 Keywords: Rare disease, NGO’s, Foundations, Awareness, Treatment, Society